{"id":41321,"date":"2026-04-23T08:00:00","date_gmt":"2026-04-23T08:00:00","guid":{"rendered":"https:\/\/www.fqgalicia.org\/?p=41321"},"modified":"2026-04-29T09:25:09","modified_gmt":"2026-04-29T09:25:09","slug":"dia-nacional-de-la-fibrosis-quistica-2026","status":"publish","type":"post","link":"https:\/\/www.fqgalicia.org\/gl\/dia-nacional-de-la-fibrosis-quistica-2026\/","title":{"rendered":"D\u00cdA NACIONAL DA FIBROSE QU\u00cdSTICA 2026"},"content":{"rendered":"\n<p><\/p>\n\n\n\n<p>O 22 de Abril de 2026 foi o D\u00eda Nacional da Fibrose Qu\u00edstica, este ano baixo o lema &#8220;70% non \u00e9 suficiente&#8221;, co cal reivindicamos a necesidade de acelerar o financiamento no Sistema Nacional de Sa\u00fade de tratamentos xa aprobados en Europa, as\u00ed como seguir impulsando a investigaci\u00f3n para aquelas persoas que a\u00ednda non contan cunha opci\u00f3n terap\u00e9utica eficaz.<\/p>\n\n\n\n<p><br>Por iso, a asociaci\u00f3n promoveu diferentes actividades para dar visibilidade a esta problem\u00e1tica. Estas foron as seguintes:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>A iluminaci\u00f3n de diferentes edificios p\u00fablicos por toda Galicia para dar visibilidade a esta enfermidade, durante a noite do 22 ao 23 de abril.<\/li>\n<\/ul>\n\n\n\n<div class=\"wp-block-group\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"576\" height=\"1024\" src=\"https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Fuentes-de-Sabaris-Baiona-576x1024.jpeg\" alt=\"\" class=\"wp-image-41307\" style=\"aspect-ratio:0.562507932478741;width:284px;height:auto\" srcset=\"https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Fuentes-de-Sabaris-Baiona-576x1024.jpeg 576w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Fuentes-de-Sabaris-Baiona-169x300.jpeg 169w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Fuentes-de-Sabaris-Baiona-768x1366.jpeg 768w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Fuentes-de-Sabaris-Baiona-864x1536.jpeg 864w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Fuentes-de-Sabaris-Baiona-600x1067.jpeg 600w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Fuentes-de-Sabaris-Baiona.jpeg 1147w\" sizes=\"auto, (max-width: 576px) 100vw, 576px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/CHUAC-768x1024.jpeg\" alt=\"\" class=\"wp-image-41313\" style=\"aspect-ratio:0.7500082527316542;width:371px;height:auto\" srcset=\"https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/CHUAC-768x1024.jpeg 768w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/CHUAC-225x300.jpeg 225w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/CHUAC-300x400.jpeg 300w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/CHUAC-1152x1536.jpeg 1152w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/CHUAC-450x600.jpeg 450w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/CHUAC-350x467.jpeg 350w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/CHUAC-900x1200.jpeg 900w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/CHUAC-600x800.jpeg 600w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/CHUAC.jpeg 1200w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" src=\"https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Titan-Hospital-Alvaro-Cunqueiro-de-Vigo-1024x768.jpeg\" alt=\"\" class=\"wp-image-41311\" srcset=\"https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Titan-Hospital-Alvaro-Cunqueiro-de-Vigo-1024x768.jpeg 1024w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Titan-Hospital-Alvaro-Cunqueiro-de-Vigo-300x225.jpeg 300w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Titan-Hospital-Alvaro-Cunqueiro-de-Vigo-768x576.jpeg 768w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Titan-Hospital-Alvaro-Cunqueiro-de-Vigo-1536x1152.jpeg 1536w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Titan-Hospital-Alvaro-Cunqueiro-de-Vigo-600x450.jpeg 600w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Titan-Hospital-Alvaro-Cunqueiro-de-Vigo.jpeg 1600w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"334\" height=\"280\" src=\"https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Ponte-Romana-de-Ourense.jpg\" alt=\"\" class=\"wp-image-41309\" style=\"width:372px;height:auto\" srcset=\"https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Ponte-Romana-de-Ourense.jpg 334w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Ponte-Romana-de-Ourense-300x251.jpg 300w\" sizes=\"auto, (max-width: 334px) 100vw, 334px\" \/><\/figure>\n<\/div>\n<\/div>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Mesas informativas no Hospital \u00c1lvaro Cunqueiro de Vigo e no CHUAC de A Coru\u00f1a.<\/li>\n<\/ul>\n\n\n\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Mesa-CHUAC-768x1024.jpeg\" alt=\"\" class=\"wp-image-41315\" style=\"aspect-ratio:0.7500056340567463;width:413px;height:auto\" srcset=\"https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Mesa-CHUAC-768x1024.jpeg 768w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Mesa-CHUAC-225x300.jpeg 225w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Mesa-CHUAC-300x400.jpeg 300w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Mesa-CHUAC-1152x1536.jpeg 1152w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Mesa-CHUAC-450x600.jpeg 450w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Mesa-CHUAC-350x467.jpeg 350w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Mesa-CHUAC-900x1200.jpeg 900w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Mesa-CHUAC-600x800.jpeg 600w, https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Mesa-CHUAC.jpeg 1200w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n\n\n\n<p>Dende a FEFQ f\u00edxose un chamamento \u00e1s Administraci\u00f3ns P\u00fablicas para actuar con urxencia en d\u00faas li\u00f1as: a aprobaci\u00f3n urxente dos tratamentos xa dispo\u00f1ibles e o apoio \u00e1 investigaci\u00f3n en enfermidades raras como a Fibrose Qu\u00edstica. Podedes ler o comunicado ao completo na s\u00faa <a href=\"https:\/\/fibrosisquistica.org\/la-fefq-reclama-en-el-dia-nacional-de-la-fibrosis-quistica-agilizar-el-acceso-a-tratamientos-ya-aprobados-y-mas-inversion-en-investigacion-para-no-dejar-a-nadie-atras\/\" target=\"_blank\" rel=\"noopener\">p\u00e1xina web<\/a>. TTam\u00e9n podedes visitar a p\u00e1xina web oficial do <a href=\"https:\/\/dianacional.fibrosisquistica.org\/\" target=\"_blank\" rel=\"noopener\">D\u00eda Nacional da FQ 2026<\/a> e ver todas as actividades que foron levadas a cabo no territorio nacional.<\/p>\n\n\n\n<p><\/p>\n\n\n\n<p><\/p>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\"><\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\"><\/div>\n<\/div>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>O 22 de Abril de 2026 foi o D\u00eda Nacional da Fibrose Qu\u00edstica, este ano baixo o lema &#8220;70% non \u00e9 suficiente&#8221;, co cal reivindicamos a necesidade de acelerar o&#8230;<\/p>\n","protected":false},"author":5,"featured_media":41306,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[16],"tags":[],"class_list":{"0":"post-41321","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-uncategorized-gl-2"},"jetpack_featured_media_url":"https:\/\/www.fqgalicia.org\/wp-content\/uploads\/2026\/02\/Conselleria-de-Sanidade-Santiago-de-Compostela.jpeg","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.fqgalicia.org\/gl\/wp-json\/wp\/v2\/posts\/41321","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.fqgalicia.org\/gl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.fqgalicia.org\/gl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.fqgalicia.org\/gl\/wp-json\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"https:\/\/www.fqgalicia.org\/gl\/wp-json\/wp\/v2\/comments?post=41321"}],"version-history":[{"count":2,"href":"https:\/\/www.fqgalicia.org\/gl\/wp-json\/wp\/v2\/posts\/41321\/revisions"}],"predecessor-version":[{"id":41325,"href":"https:\/\/www.fqgalicia.org\/gl\/wp-json\/wp\/v2\/posts\/41321\/revisions\/41325"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.fqgalicia.org\/gl\/wp-json\/wp\/v2\/media\/41306"}],"wp:attachment":[{"href":"https:\/\/www.fqgalicia.org\/gl\/wp-json\/wp\/v2\/media?parent=41321"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.fqgalicia.org\/gl\/wp-json\/wp\/v2\/categories?post=41321"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.fqgalicia.org\/gl\/wp-json\/wp\/v2\/tags?post=41321"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}